King Rat (gkr) wrote,
King Rat
gkr

First hospice

Five+ hour visit. Mostly because my mom can't get to the point. Also, the nurse was 45 minutes late.

Still, it went well.

If you want to know where I get the gene for being difficult, it's my mom.

The biggest stumbling block today was the green form, or POLST. I can't remember what that stands for. My mom has a health care directive. She thought long and hard about what she wants and wrote out two pages of instructions for what to do in case she is incapacitated. She wrote this up last summer. The short version of it is she doesn't want any intervention to prolong her life if her incapacitation is due to her A.L.S. But if it's something else, like a heart attack or a tree falls on her, she wants the measures.

The green form asks just a few questions: do you want CPR? do you want no resuscitation, limited measures, or to go all out? do you want anti-biotics? do you want tube feeding?

If hospice has to call emergency personnel, they aren't going to spend 10 minutes parsing the details of her health care directive. My mom doesn't like the simple form. Why did I write a health care directive then?

Thing is, if she doesn't select something on the form, hospice provides the maximum intervention.
Tags: a.l.s., mom
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